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Cure Blau Syndrome Foundation
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Help accelerate the search for a cure.

Thank you for supporting the Cure Blau Syndrome Foundation. Your gift helps fund critical research and provides hope for families affected by this rare inflammatory disease.

Give now

Lexi Townsin, 2012–2019. Lexi’s light continues to inspire hope and the search for a cure.

Lexi Townsin as a toddler in a fur hat and red cardigan, smiling in a snowy holiday scene

Choose your gift

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Amount
Donate US$100

Online giving is being set up. You can donate by mail today.

Why your gift matters

There is no cure yet. Research is how we get one.

  • 100% to the mission

    Every dollar donated supports research and patient programs.

  • Rare means underfunded

    Funding and resources for rare diseases are almost non-existent.

  • Small gifts, big impact

    Even a small donation makes a huge impact on a disease this rare.

The Cure Blau Syndrome Foundation is a registered 501(c)(3) nonprofit organization. Donations are tax-deductible in the United States.

Other ways to give

More ways to fund a cure.

Hold a fundraiser

Car washes, concerts, golf tournaments and casual days. We have templates and will help you plan.

Get fundraising ideas

Buy Felix's book

Lexi’s brother, Felix, wrote Don’t Floss Your Toes: Advice From a 5-Year-Old. Proceeds are donated to the Foundation.

Get the book

Sponsor a family

Help a family travel to the next Blau Summit, where patients meet the researchers working on their disease.

Email us about sponsoring

Prefer to give time instead? Volunteer with us.

Can't give today? Give researchers your story.

Enrolling in the Blau Syndrome International Registry costs nothing and gives scientists data they cannot get anywhere else.

DonateJoin the patient registry