Recommend a provider
Help another family find a doctor who knows Blau.
Connecting with medical professionals who know Blau syndrome can be difficult. If you have experience with a treating physician you would recommend to other patients, add them to our medical provider referral list.
Two ways to share
Add it yourself, or let us do it.
- 1. Use the shared list. Add the provider’s details to the Google document. It opens in a new tab.
- 2. Email us. Send the details to blaufoundation@gmail.com and we will add the information for you.
Physician guide
Help your current provider get up to speed.
Many physicians have never seen a case of Blau. Our guide gives them the essentials to recognize, diagnose and manage it.
Every dollar, every hour, every voice matters.
Rare disease research only moves when families and supporters push it. Your gift funds research directly, and your story in the registry gives scientists data they cannot get anywhere else.