Blau Ambassador Program
Make a difference in the rare disease community.
The Blau Ambassador Program is a service-learning opportunity for high school and university students who want to raise awareness, educate others, advocate or fundraise for Blau syndrome.
Who it's for
Students with a goal and a cause.
Priority consideration is given to individuals with Blau syndrome, but all students are welcome to apply.
Set your own goal
Choose a personal goal and complete a project that contributes to the Blau syndrome community.
Use your strengths
Social media, public speaking, fundraising or creating educational materials. This is your chance to make an impact.
Get documentation
The Foundation documents your participation for school requirements, college applications and scholarship applications.
Ideas for your project
Start with one of these, or bring your own.
Social media and storytelling
- Create a social media series on Blau syndrome.
- Share “A Day in the Life” of someone with Blau.
- Research round-up: summarize key findings in Blau research.
- Spread awareness about treatment options.
Public speaking and outreach
- Give a presentation in class, at a conference or in your community.
Fundraising and events
- Organize a car wash, bake sale or golf tournament.
- Partner with a school club to support the Cure Blau Syndrome Foundation.
- Coordinate an awareness day.
Creative projects
- Design flyers or educational materials for doctors and patients.
Scientific collaboration
- Support a scientist investigating Blau syndrome, based on their needs.
- Craft a scientific research project.
Have another idea?
We’d love to hear it. Our Program Director can also help you develop a goal based on your skills and interests, if needed.
How to apply
Send your application to our Program Director.
Download the program details and the sample application, then email your application to Dr. Melinda Pierson, Blau Ambassador Program Director, at blauambassador@gmail.com.
Meet our ambassadors
Students already making an impact.
8th grade, Brazil
Isabella Oliveira Amorim
Bella's Ambassador Project focuses on social media to raise awareness of important issues related to Blau syndrome. As an Ambassador, Bella will use her own expertise as a patient to share about living with Blau and highlight related topics such as service animals, exercise, anti-inflammatory cooking, medical treatment and more.
Sophomore, California, USA
Keira Howell
As a teen with a rare disease, Keira knows first-hand how much it means to find people who understand. For her Ambassador Project, she hopes to create connections among teens with Blau syndrome through a monthly online teen community. Keira will also contribute educational content on social media about living with Blau syndrome.
Every dollar, every hour, every voice matters.
Rare disease research only moves when families and supporters push it. Your gift funds research directly, and your story in the registry gives scientists data they cannot get anywhere else.