Blau in the news
Families sharing their journeys with Blau syndrome.
Articles from media outlets around the world. Every story raises awareness that clinicians and families need. Each article opens on the publisher's website.
Victoria Buzz · 2019
This Victoria family hopes to film documentary about 6-year-old daughter's extremely rare disease
Read the article (opens in a new tab)Times Colonist
Dad tries to shed light on girl's rare disease by making documentary
Read the article (opens in a new tab)Victoria News
Royal Roads takes active role in search for cure to rare disease
Read the article (opens in a new tab)B.T. · In Danish
Tre-årige Pernille har blau-syndrom: 'Uvisheden er rigtig slem'
Three-year-old Pernille has Blau syndrome: 'The uncertainty is really bad'
Read the article (opens in a new tab)Colac Herald · 2014
Family stays positive amid failing eyesight
Read the article (opens in a new tab)Orange County Register · 2020
CSUF professor spends off-campus time focused on 11-year-old daughter with rare disease
Read the article (opens in a new tab)Hospital News
Understanding childhood arthritis: from diagnosis to treatment
Read the article (opens in a new tab)The Mighty · 2016
Why I can't get legally married because of my disability
Read the article (opens in a new tab)Goldstream Gazette
Quest to cure Blau syndrome a family affair
Read the article (opens in a new tab)Cleveland Clinic
Blau Syndrome: A Mom Takes Charge
Read the article (opens in a new tab)Versus Arthritis
“I never met another child with the same condition as me”
Read the article (opens in a new tab)
The Children's Inn
Makenna suffers from Blau Syndrome, rare inflammatory disorder
Read the article (opens in a new tab)
Articles are hosted by their publishers, and some links may change or move over time.
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