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Cure Blau Syndrome Foundation
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Events

We gather for the cause, and for each other.

The Foundation hosts benefit events and the Blau Syndrome International Summit to raise funds for research and bring the Blau community together. Upcoming events are announced first to our newsletter and on social media.

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String lights glowing in the trees of a backyard at dusk

Past events

Recent gatherings for the Blau community.

Saturday, June 6, 2026 · Yorba Linda, California

An Evening of Music and Hope

On a June evening in Yorba Linda, friends, families and supporters gathered in a backyard for an intimate benefit concert under the stars. Internationally acclaimed Irish folk musicians Daoirí Farrell and Kevin Crawford, whose music has carried across Europe and North America, played for the Cure Blau Syndrome Foundation.

Proceeds from the evening supported research and global collaboration to accelerate treatments and, ultimately, a cure for Blau syndrome.

  • Live musicIrish folk from Daoirí Farrell and Kevin Crawford, under the stars in a backyard setting.
  • Dinner and a hosted barA hosted dinner and open bar for every guest.
  • AuctionsA live and silent auction and a special fundraising appeal for research and patient programs.
  • The workA short program on the Foundation's work and the progress toward better treatments and a cure.
Strings of warm lights hung through pine trees at dusk
Irish folk singer Daoirí Farrell seated on a leather sofa holding a bouzouki

Featured musician: Daoirí Farrell

One of the most acclaimed voices in contemporary Irish folk music, the Dublin baritone has received several BBC Radio 2 Folk Award nominations. Most importantly, Daoirí is the proud dad of Fiadhna, 6, who has Blau syndrome.

Aerial view of the California State University, Fullerton campus

July 9–10, 2026 · Cal State Fullerton

Blau Syndrome International Summit 2026

Our first international summit brought researchers, clinicians, patients and families together for two days at Cal State Fullerton, with a keynote from Ruth Napier, Ph.D., three concurrent tracks and a half-day natural history study.

Read the summit recap

Host your own event

Bring the cause to your own backyard.

A benefit concert, a silent auction, a golf tournament or a lemonade stand: any gathering can raise money and awareness for Blau syndrome. We are always ready to offer our help, expertise and inspiration.

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New events go to our newsletter first, along with research news and ways to help.

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